Fatigue

I am having more fatigue. I went to a few different web sites to read about cancer related fatigue. One common thing I found is that fatigue often is but should not be confused with tiredness. Tiredness happens to everyone. It is an expected feeling after certain activities or at the end of the day. Usually, you know why you are tired, and a good night's sleep solves the problem. The fatigue I’m talking about is unpredictable. Usually, it comes on suddenly, does not result from activity or exertion, and is not relieved by rest or sleep. It just happens.

Some signs of cancer-related fatigue I found at a variety of sites are:
• Feeling tired, weary or exhausted even after sleeping
• Lacking energy to do your regular activities
• Having trouble concentrating, thinking clearly, or remembering
• Feeling negative, irritable, impatient, or unmotivated
• Lacking interest in normal day-to-day activities
• Spending less attention on personal appearance
• Spending more time in bed or sleeping

Those are great descriptions and I think I’ve experienced all of those to some degree. However, they miss a key point about cancer related fatigue. It makes it sound gradual but the fact is it is often sudden and paralyzing. And dangerous. When Dallas and I went fishing, I fell asleep while driving. Dallas calmly took control and woke me up. But the whole language of “falling asleep” isn’t correct. I didn’t fall asleep; I shut down – like flipping a switch. It’s said that Cool Papa Bell was so fast he could turn off the light and be in bed before the room got dark. That’s the challenge of coping with cancer related fatigue.

Eat Good Food, Be Kind, Tell the Truth

Click below for the collection of recipes or for an easy to print copy of a single recipe.

Collection of Recipes

Spicy Chipotle-Tomato Sauce: Great on steaks and burgers.

The Friday Update: Just the Facts

What is a Normal Day?

After looking at the blog a friend, Sam, asked me, “When do you sleep”? I guess that’s as good as place to start as any. I go to bed around 10 or 10:30 and get up around 3 or 4 in the morning. Five to six hours of sleep seems to do the trick. I have a cup of coffee and work on this blog either jotting down some ideas for posts or cleaning some things up. The blog has helped keep me sane in the early morning hours.

I’ll start work around 5:30 or 6. I work from home for a company called Maritz. and the people I work are located in the Detroit area. My primary client is General Motors. I do Organizational Development work with their dealer network and a group of nationwide Facilitators to help improve work processes in GM dealerships. Buy American. I recently read an advertisement by the president of Toyota, North America extolling their commitment to quality and safety since 1937. I don’t think I would have gone back quite that far. Did I mention my father was a WWII vet? He was in the South Pacific. GM and Maritz have been very good to me.

I take a break around 10:30 and try to walk the dog and grab some lunch. Since the folks in Detroit are an hour ahead of me this overlaps with their lunch. The afternoon is more work, take a few breaks, and I’m generally done at 5 or so. I have a lot of flexibility. I also have a lot of variety and creativity in what I do, it isn’t physically taxing, and I’ve been able to continue working without a problem. Chemo brain interferes a little because I am forgetful and have some confusion keeping track of my schedule. The folks I work with have been very forgiving.

Especially when on Prednisone I tackle a variety of small household tasks throughout the day. I tend to think about the things I’m working on while I start a meal, clip some flowers, or whatever. Random thoughts get in too like thinking about painting the other bathroom. I watch many Twins games in the evening and try to do some needlepoint during the game. Baseball is similar to the blog; it helps keep me sane but in the evening.

I do interact with my family and there is no “normal” routine there. Eunice is in West Virgina for a family reunion. Ann and Dallas are working and keeping me company in the evening. We have dinner together. The consistent thing is they take great care of me. Sleep comes with a “love you, goodnight” for all.


Eat Good Food, Be Kind, Tell the Truth

Click below for the collection of recipes or for an easy to print copy of a single recipe.

Collection of Recipes

Noodles with Peanut Sauce and Vegetables: a family favorite.

The Friday Update: Just the Facts

Sweet Sleep

My sleep has been off and on. I sleep well but not for long periods of time - typically about 5 hours. I've been taking a nap during the day for 30 minutes or so. Felt lousy all afternoon last Saturday for no apparent reason. That's all I have to complain about so it isn't much. The other odd thing is that I go to bed with a "normal" blood sugar but wake up with a high blood sugar; not just a little bit high but near 300. This is unusual for me. I'm going to check in with my endo today to see if she has any insight/advice. I have a scan on Friday.

In the meantime, Dallas has started his work as a lifeguard and is happy to be busy and earning some money. His friend, Amanda, is coming to visit next week. Amanda was here last year and we are looking forward to another visit. Ann returned from her first trip with Wilderness Inquiry and loved it. They took 16 mentally/developmentally challenged people to the Apostle Islands for a camping/canoeing weekend. She was enthusiastic about the everything.

I continue to feel well and enthusiastic about things too.

Imagonnapaintdabathroom

I'm feeling well during this cycle. My infusion Monday will be the last for this cycle and then the booster shot of Neulasta on Tuesday. The Prednisone is doing it’s work - I have good energy - and the additional NPH insulin does a great job controlling my blood sugars. They are running between 80 and 150 which is great.

I slept well last night for about 4 hours. Sometimes that’s all I need. I fill my time with a variety of things like this blog, cooking, work, needlepoint, gardening, watching Twins games, walking, and so on. Not too exciting. It’s funny how the port gets in the way of little things like driving a car. The seat belt goes right over the port. A golf bag strap would go over the port. Eunice had a bad day and buried her head in my chest where my port just happened to be. Not sure who it hurt more but once I got it out of my lung and we iced her head, things were cool.

Today, Imagonnapaintdabathroom – on Prednisone. I’m not very handy. Oddly enough the one thing I can do is electrical stuff. My knowledge of electricity goes back to my Junior High shop class. I had a “deck” of cards with a scantily clad woman on the front and when someone opened the cards they got an electric shock. My shop teacher found it in class and took a liking to me. The class formed a circle holding hands and he opened the deck and had two students in the circle put their finger on the cleverly disguised conductors that administered a shock that went around the circle. This was great entertainment for 7th graders and I got an “A” in electricity. 1968 wasn’t all bad. We did not cover painting but Imagonnapaintdabathroom. The first coat may be on by the time you read this.

Eat Good Food, Be Kind, Tell the Truth

Click below for the collection of recipes or for an easy to print copy of a single recipe.

Collection of Recipes

Salmon with Coriander Rub and Lime: Adapted this recipe from Bon Appetit. It was simple to make but a little fussy.

Dilled White Bean and Grape Tomato Salad: Went well with the Salmon and very easy to make.